Posts tagged ‘child’
Whenever we visit a new doctor, I am inevitably asked if I have a medical background because I throw around terms like “pneumothorax,” “sepsis,” and “hypotonia” with reckless abandon. Aside from the initials people (see Awalkabout’s “Alphabet Soup“), there’s a whole slew of other words and terms we parents are required to learn simply to participate in an intelligent, informed discussion with a doctor or at an IEP (Individual Education Plan) meeting. My entire knowledge base and language have changed since having C seven years ago. I’ve learned about needle gauges, what a swallow study is, all about methylation pathways and how they work (or don’t), what to do about ankle pronation, what epi-pen is for and how to administer it, and what supplements to give when, how, and with what other supplements. It’s no wonder my brain feels full, as I think I’ve earned a Ph.D. and an M.D. in “the study of C.”
So when that inevitable question about my medical background (or lack therof) comes up, I simply say it’s been “trial by fire.”
There is a charm about C that captivates people. (Actually, he captivates adults; children haven’t yet come to appreciate him.) He talks with people in the grocery store, at the post office, and everywhere else we go. Teachers I don’t even know stop me in the hallway at school to tell me something cute he said to them. He calls out, “Hey, pretty lady!” to about every woman we see, putting smiles on the faces of elderly blue haired women in the aisles of Safeway.
Today, however, he turned that sweetness and light toward me. I haven’t showered and I’m in sweats as I’m watching an old rerun of “America’s Next Top Model.” When he asked what the show was, I told him it’s about pretty girls. He said to me, “You’re a pretty girl, Mommy, you should be on that show.” Then he added, “Wouldn’t it be cool if all the girls in the world could be on that show?” I was struck with his amazing perspective on seeing the beauty in everyone and how easy it is for him. Of course he probably doesn’t yet possess the level of insight with which I’m crediting him, but perhaps it really is just that simple.
I used to say “God never gives you more than you can handle.” And, in the way that people we spend only the briefest about of time with can sometimes do, an acquaintance profoundly changed my mindset. I was talking with a woman one day who responded to my sentiment about what God gives us by saying, “No, God gives us what we need.”
What a powerful statement. I still haven’t figured out how that statement applies to me exactly, but I’m on the watch (and receive clues) for it daily.
My husband and I have a 6 year old with high functioning autism. He is an extraordinary child to say the least. Parenting him has been nothing like I thought parenting would be – in happy ways and in challenging ones as well.
Welcome to our journey.